Tuesday, May 19, 2020

During Coronavirus Embrace Now


My son Daniel stands at the shore of the Atlantic Ocean with his arms spread behind his back and smiles into the June sun.

With beaches closed due to the Coronavirus, this is not a recent event. It was over two decades ago when we went to the beach as a family and I took the photo that I have since placed into a burnt-maroon frame. When I kiss his face though the acrylic, I know that many see the photo as a three-year-old boy enjoying a day at the beach. But it symbolizes more for me. It’s a reminder to live every day as though it is all you have.

When the photo was taken, our family was trying to do something familiar in a time when nothing felt normal. Less than two weeks earlier we’d been told the tumor in Daniel’s neck was malignant. My son went through tests, two surgeries—one to implant a double-lumen catheter— and a week of chemo. He lost his hair on the trip to the beach; it came out in clumps on the van’s back seat. “It’s sad, isn’t it?” his five-year-old sister said. “Isn’t it just so sad?”

Just the other day during the Coronavirus lockdown, we celebrated my youngest child’s 23rd birthday. Our family tradition is to go to Red Robin for birthday dinners. This week we had to adapt to something new. At a table in front of the restaurant, my husband, wearing a face mask, ordered our meals. We waited in our cars until the waitress signaled our food was ready. With meals in tow, my three kids and my eldest’s boyfriend, my husband and I, drove in our cars to a vacant parking lot in the shopping complex. I sat on a towel on the curb to eat my salad. The others sat and stood at socially-acceptable distances and consumed burgers and fries.

It was wonderful to see my adult children and hear their stories of how they are coping and adjusting to this season of strange. The restaurant where Ben worked closed, so he was laid off in March. The birthday daughter, Liz, teaches her high school students online. My daughter Rachel and her boyfriend have had an uptick in their home repair and remodeling business. “People are looking at the homes they’re in all day and see what needs to be improved,” the boyfriend said.

After we ate, we sang happy birthday. We played music on my husband’s phone and my daughters danced the Macarena. As the sun set and we said our good-byes, giving each other virtual hugs, I smiled. This was by no means an ideal dinner out, but it was all we had.

As we parted, I didn’t say, “Next year it will be better.” I did not add, “Next year we can be back inside Red Robin and enjoy a meal around a table with chairs.” I didn’t voice any of that because I do not know what next year will hold. Days before Christmas 1996, Daniel spiked a fever and we took him to the emergency room. We spent Christmas day in the hospital with him. “Next Christmas,” I said as we ate ham from the hospital cafeteria, “he’ll be finished with his protocol. We’ll all be home for Christmas then. We’ll be a normal family again.”

Daniel’s death crushed the hope that the following Christmas would be better. He contracted a staph infection at the end of January and died in February. His absence is a hole in our hearts.

In the photo at the beach, Daniel wears a cap to cover his bald head. His hands are full of sand and shells. He’s standing by the fierce waves but he looks the other way, in the direction of the sun, that smile on his face. My boy is not fearful. His expression shows that he’s happy to be at a place he loves with his family.

In the midst of lockdown we may think we want this isolation to end and for things to get back to normal. Yet the days in shelter-in-place hold value. We’ve traded a day of our lives for each one. For better or worse, nothing will be the same again. You might think things are difficult, but take a look at what you do have whether it is children, a spouse, friends, or parents. Maybe you are lucky enough to have them all, even if they are miles away.

Here and now, this is the time to stand with your arms spread out, your hands filled with life and smile into the sun.

Another bereaved parent said it best."Life is short, break the rules [but I bet he’d expect us to follow the COVID-19 regulations], forgive quickly, kiss slowly, love truly, laugh uncontrollably, and never regret anything that made you smile.” (Mark Twain)

Monday, May 11, 2020

What Do Mamas Really Need?




Don't ask me what I had for lunch Friday or when the last time was that I baked a chocolate cake, but ask me about that Mother's Day 1997 and I will recall specific details. Like much about the grieving life, we mothers remember significant dates and places as though they occurred yesterday.

Twenty-three years ago we were at my cousin Amy's for a family gathering to celebrate moms. I'd given birth twelve days before to my fourth child. I was sleep-deprived and adapting to my new daughter who enjoyed challenging me with her tears. To be fair, I'm sure that I challenged her with my bouts of crying too.

At the gathering were cousins, an aunt, and my grandma. My mother, who had flown in from mission work in Japan to help my husband and me, was among us. On a normal Mother's Day I would have relished the family time, but on that particular day I struggled with everything. Three months earlier I'd become something no mom wants to be----bereaved.

Six-year-old Rachel, my eldest, made a card with a lot of flower drawings and included all four of my children's names. From my relatives, I received tight hugs that made me tear up.

That first Mother's Day without Daniel, I needed for all my children to be acknowledged. Even though he was not physically with us, I wanted the assurance that Daniel had not and would not be forgotten by others. I was navigating a new journey named Bereavement and I had to find out how I would continue to carry the memories of him with me.

Mothers need all of their children to be acknowledged. Not just the one that is the smartest or the one who wins the awards in sports or that child who is talented at playing the trumpet. Teach me how to look at each of my children and treasure their inner beauty, vitality, and quirks. Ask about Daniel even though he is not seated around the table.

And then moms need to be acknowledged for who we are---sacrificial, loving, warriors for truth, fighters, expectant, hopeful, forgiving, and with that sixth sense that knows (usually) when we are being lied to by one of our offspring.

We mothers worry over our children's health and grades and futures. We hold onto guilt when we feel we could have prevented something from happening that caused our child pain or suffering. "Right there," my sister-in-law said as she was giving me a back massage years ago when my children were small. She ran her fingers over my shoulders and into that space between them. "This is where mothers carry the weight of the world."

What do mamas really want? It varies from expensive perfume to a strong cup of good tea. Time alone to catch our breath to wanting to know about our child's latest craze.

But besides the frilly stuff or the perfume, dinners out, flowers, handmade cards, and tea, what do mamas need most of all? Gratitude. A sincere thank you works well today. Actually, any day, really. Moms crave the reassurance that even in their inability to possess superpowers, they are doing their best.

Thank you, moms, young, old, bereaved----for being YOU.